Thursday, June 14, 2012


I wish I could find the time to write. I miss writing. Writing is like talking to a friend. My emotions and the happenings of my day dictate what I write and how I write.

Tonight, my thoughts are bouncing from one thought to another. Not focusing.

We had interesting weather today. I woke up at 6:30 and it was near 70 degrees and blue sky. By dinner time it was raining, thunder and lightening.

We were planning to go to Josh's baseball game, but by 3:30 it was cancelled.

Heather and Matt will be traveling to Salem on Wednesday to spend time with Jeff. He graduates from high school the end of this week. Patrick and Josh will be staying with us. Better stock up on groceries to feed two teenage boys. :-D

I haven't been good at keeping up my journal, my home nor my duties in the RV park...I am failing miserably. This is not easy for a type A personality. Damn disease! I'm trying to be "OK" with the amount I do accomplish rather than frustrated with what I can not do. Wish me luck please!

Sunday, May 13, 2012

Anonymous Comment

I would like to share a comment I received on my last post. The first four comments were supportive. The last comment was the first negative reaction I have received. 
'us fibromites'.... there's such a self-pitying group-y tone to all this. Oh, it must be really difficult for you if a page changes shape or colour...

I can understand why moving house or changing jobs might be difficult for people who are ill, but seriously? You need an adjustment period because a webpage changed? I think thinking of yourself as a 'fibromite' who can't cope with anything can't help you to get on with life."

Ms or Mr Anonymous, I would like you to know that you have ruffled my feathers. If you had said these words face to face with me, we would have been in a heated discussion. I can only assume that you are on a Fibromyalgia site because you either have Fibro or someone close to you does. I suggest if you are friends or family of someone who has this chronic disease, that you begin at the beginning and read through my blog. In the beginning, I list my Fibromyalgia symptoms. If you have Fibro, you may recognize similar symptoms and realize that you have a friend who understands. If you know someone with the disease, maybe you will be more sympathetic. You may realize that others have the same symptoms and she is not crazy or that they have a disease with the right to be "self-pitying" periodically. In case you have not noticed, this blog is about MY journey with Fibromyalgia. If you do not have a positive comment, please do not leave one. If you do not understand Fibro, I am wide open to field questions.

YES you can ..... be patient and kind, eliminating negativity.
YES you can ..... be sensitive to others.

Monday, April 23, 2012

Update (brain will not help with a clever title)


So I sign into my blog and find out there is a new look. I hate change!!! I think it is because I must adjust. Adjusting is difficult for a Fibromite. I hope the adjustment period won't take long.

We have had beautiful weather the last few days. Thunder storms  in the evenings. I enjoy the sound.  :-D

Our Miss Lyla spent a week with us. We sure enjoyed her. She enjoys taking every minute of your day and I enjoyed being with her. I had to give up household duties, including fixing dinner, while she was here. I didn't have extra time. You can imagine how it stacked up around here. She is a delight and worth every minute.

My doctor ordered another round of antibiotics for my bladder infection. My intestinal track is sore,  but the infection may be gone.

I started a weekly Bible Study on David. I think I will enjoy the lessons. I've met many new friends. Heather is also attending. It will be nice to spend an evening with her without husbands and kids.

The Park is coming along. The new owners arrived for a week.We are enjoying getting to know them.

I had a mini breakdown last week. The combination of over working my body and the stress of alot to accomplish in the park and in my home. Dwain didn't help much. He was having a rough couple of days too.

Hugs to everyone!


Yes you can ... learn how to use a new program.

Yes you can ... stand strong to up to the minute challenges

Tuesday, April 3, 2012

Winter is Not Over!

"Winter Weather Advisory"


Gotta "cold" sound to it doesn't it? We are expecting four days of snow. I'm hoping that the forecast changes drastically...quickly. It was in the 20's last night. Today was warm. The snow-covered mountains are beautiful.


We are now managing an RV park in Wallowa, Oregon, located in NE Oregon. Lots to due before visitors arrive. More cleaning than I expected. So taking one step at a time. Dwain has the grounds looking good. If it snows hard, we may have a day off! :-D


My UTI is not clearing up. They sent my "sample" for culture. The nurse said she would call me on Monday, but has not. I will call her tomorrow morning. I gotta get rid of this nuisance. It's dragging me down.


Our granddaughter, Lyla, will arrive for five days on Sunday afternoon. Looking forward to our time together.


Our daughter, Heather, called tonight and invited me to attend a Women's Bible Study with her. I think I will enjoy the time together. The ladies are from different churches within Wallowa County and meet once a week.


My bed is calling. I hope everyone has a good sleep tonight.



Yes, I can ..... breathe deeply to help relax


Yes, I can ..... dress in layers to keep myself warm


Monday, April 2, 2012

Just Close Your Eyes

I had a revelation about a month ago. Been practicing and found that the revelation WORKS!!!
Have I got your attention?

Fibromyalgia messes with my cognitive abilities. The symptom does not discriminate. It can intrude while I'm speaking, writing or while I'm trying to have a quiet moment, thinking. My mind will go blank while trying to think of the right word. I know the word I'm trying to say. I can tell you what letter it begins with. I can see the word written in my thought. I just can't get the word out of my mouth, on paper or in my thought.

When I was working for an attorney, I began to switch words while typing. The word I switched the most was "court." I would type "could" in place of "court." When you are doing a legal document, the word must be correct. You can't replace "court" with "could."

One day while talking with Dwain, I could not speak the word to complete my sentence. I closed my eyes and began to speak. I was able to complete the story. Each time I have difficulty conveying my words, I close my eyes and wha-la! I can complete the sentence. Although I am ecstatic to complete thoughts, I'm sure Dwain is happy too. This has been hard on his patience. He has learned to wait. However, once in awhile, he snaps at me to complete the sentence. So I know it is frustrating for him. I feel bad enough without his snaps. My self esteem lowers a notch.

Soooooo, if you have this Fibromyalgia symptom, try closing your eyes. I hope you can complete your story, your written word or your thoughts.


Yes, you can ..... complete your expression

Yes, you can ..... learn new technique,s no matter your age

Wednesday, March 28, 2012

Back in Wallowa

Our time in Arizona is over for another year. I sure miss the warm sunshine. Today I got cold to the bone. Getting this cold messes with my Fibro. So, I'm in my recliner with my heating blanket on my back.



Our winter went by fast. We parked in a different area this year . Our neighbors were hard to get to know. If we return to the Yuma area, we will stay near our friends of years past. The desert was cooler this winter. The wind blew almost every day.


My Fibromyalgia has been difficult. I've had increased movement courtesy of my Restless Leg Syndrome. The scary feeling of Anxiety has increased daily. I'm still trying to talk myself down, but it is getting more difficult. I had a UTI (Urinary Tract Infection) on our way home from Arizona. It's been almost a week since I've taken the last of my medication. I'm not having symptoms, so hope the infection is totally gone. In the beginning, I had the usual UTI symptoms. I also had increased Fibro pain through my hips and upper legs. I had a hard time dealing with the pain but after three days the increased pain was gone.


Dwain and I have taken a summer job. Wish me luck! I'm hoping once we have been here for a couple of weeks, we will be ready for the public. We are managing an RV Park. There are 31 sites, so not too big. We have stayed in the Wallowa River RV Park many a summer. The owners live in Seattle, WA. Care takers are needed for the time they are not in the park. Which will be most of the summer.


Enough babbling.

Sunday, March 11, 2012

My Position in Space

I had a few boxes stacked in the kitchen. I thought they were out of my way. I was clearing the dishes from the table, turned left and Crash! Boom! And I tripped over the boxes. Of course they all tumbled with me. I'm ok, but bruised my left leg and strained the muscles on my upper left arm. I have trouble with the position in the space that I occupy. Usually it is because I do not think, I just go. This "little" problem has caused me any falls. My brain forgets to worry about where I'm going. I see this as an aspect of Fibro Fog.

We have had a nice three months in southern Arizona and California. We had more wind in Yuma than usual. A couple we graduated high school with, Tom and Marlys, joined us for a week. The four of us then traveled to Anzo-Borrego State Park in southern California. There is so much to see. I encourage everyone to visit this park. They have campgrounds as well as boondocking areas.

We have thoroughly enjoyed our time with Tom and Marlys. They are "good people." Marlys has a medical issue that requires her to take rests, so that helps me to rest myself. Tomorrow Dwain and Tom will be taking a hike in the park. They are hoping to see Big Horn Sheep. Marlys and I are going to the town of Julian. I understand there are unique shops with an apple theme. I hear their pies are to die for, so we will test that piece of information. :-D

Wednesday we will begin our trek north. We want to be in Wallowa by April 1st. We may take a day or two at Joshua Tree National Park before arriving in Apple Valley to visit friends. A nice amenity of receiving Social Security Disability is that campgrounds on government land are half price via my "Access Pass." We also enter the park for free. What a blessing. Living on a fixed income can be tough at times.

Yes you can ... renew old friendships

Yes you can ... enjoy camping with Fibromyalgia

Friday, March 2, 2012

Enjoying our visit with high school friends. Yesterday we drove the "loop" of Yuma and pointed out locations we thought they would be interested in. We had lunch at Lute's, always an interesting experience. My stomach hurt as we were driving home. Iwent to bed early. It's ok today. I'm sure it was because I was in the backseat and Dwain had to hit the brakes hard several times.

Today the wind has been blowing 40 mph so it is an inside day. Got a few things done. It has been a relaxing day. We will have desert with Tom and Marlys.

I have cornish game hens in the oven and they smell good. mmmmm

My eyes have been feeling out of sorts this afternoon. They feel warm and are fuzzy. Gotta blink a couple times to clear the fuzzies. :-) Yes, Fibromyalgia can touch every part of your body.

I will be making changes to my blog page. I will enter widgets that I lost with Blogger's deletions. Also, my photographer husband, no longer sells his photography on Imagekind. We've decided to leave the photos for purchase on my blog.

Tuesday, February 28, 2012

Anxiety is Creeping into my Body

High School classmates will be here late afternoon. Looking forward to their visit, but anxiety is increasing as my morning progresses. We live in a 37' Fifth Wheel and it is a mess. I'm having trouble knowing where to start to make it presentable. Others may think it is ok, but not me (My Type A Personality at work). I wish I could say it is ok not to have the dishes and floors done, toilet scrubbed, bed made, etc. And you ask "why is she on the computer? Just do it!!"

I needed to get the March monthly bills posted online so they could be paid on time. I had done all but two last night. While posting I could feel my anxiety kick up another notch. Decided to write about it here, hoping it will help slow me down. I keep hearing my oldest son's voice, "Talk yourself down Mom. You can handle this, just calm yourself." Until today I've been able to hear his voice and advice and calm down. Tears are flowing, sniffling. CRAP!!!! I better get off the computer and breathe.

I promise to tell the end of this story later.

It's evening and I survived my melt down. Our friends arrived. We had a good visit and shared dinner. Tomorrow we will take them sight seeing.

You may wonder why I entitled this post "Anxiety is Creeping into my Body." That is how I was feeling at the time. The feelings of emotion take a grip, my breathing becomes labored and the grip continues to become more intense. So I feel like I'm being smothered as it takes over my body.

Thank you for listening today.

Monday, February 27, 2012

Relaxing Day

I had a nice day! Happy to be able to say that after the last few days.

We went into town early this morning to pick up my monthly prescriptions and got groceries. After returning to the desert, we went to visit a couple we met while playing music on Sundays. Dwain has been giving Pearl dulcimer lessons. I visited with her husband Roy. Nice folks, nearing 80. I dream of living to their age and wish I could be in as good of shape mentally and physically.

When we came home I did a few chores, laid down for about an hour. When I got up I had a snack and worked on a crossword puzzle. I didn't like the idea of fixing dinner, but we all know that dinner needed to be made. After dinner, I posted our March 1st bills to be paid. So...I was able to accomplish a few things, but the day was relaxed.

My shoulder muscles have been so tight. There is an advertisement for massage for $35 for an hour. I'm tempted to schedule an appointment.

Two high school classmates will arrive on Tuesday afternoon. Looking forward to their visit.

Oh! I wanted to mention that we have cooked two meals and one dessert in our solar oven. They all turned out yummy. Doing a roast tomorrow. :-D

So nice to write about happenings in my day and not be crabby.


Yes you can ... share your skills with neighbors

Yes you can ... have a relaxing dayR