Thursday, June 14, 2012


I wish I could find the time to write. I miss writing. Writing is like talking to a friend. My emotions and the happenings of my day dictate what I write and how I write.

Tonight, my thoughts are bouncing from one thought to another. Not focusing.

We had interesting weather today. I woke up at 6:30 and it was near 70 degrees and blue sky. By dinner time it was raining, thunder and lightening.

We were planning to go to Josh's baseball game, but by 3:30 it was cancelled.

Heather and Matt will be traveling to Salem on Wednesday to spend time with Jeff. He graduates from high school the end of this week. Patrick and Josh will be staying with us. Better stock up on groceries to feed two teenage boys. :-D

I haven't been good at keeping up my journal, my home nor my duties in the RV park...I am failing miserably. This is not easy for a type A personality. Damn disease! I'm trying to be "OK" with the amount I do accomplish rather than frustrated with what I can not do. Wish me luck please!

31 comments:

  1. I was wondering what your experience with pregnancy and fibromyalgia was, I am only 17 and I have fibromyalgia very bad and I've been told pregnancy is very difficult to deal with and it causes worsening symptoms.

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    1. I know everbody is different but I have four kids, three of wich after I was diagnosed. The pregancy was not difficult on my fibro. Keeping up with four kids is the hard part of it.

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    3. I know everbody is different but I have four kids, three of wich after I was diagnosed. The pregancy was not difficult on my fibro. Keeping up with four kids is the hard part of it.

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  2. Hi Deb!!!!

    I hope you have a great time with your two grandsons!!! Yes, feeding two teenage boys will clean out your kitchen and fridge! I do wish you luck on your projects with the RV park. you do what you can and although it is hard, try not to be down about what you can't do. Focus on the cans! It is hard for us type A personalities though isn't it??? I hope your weekend is awesome!

    Heather

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  3. Hi Deb,
    I follow your blog as I am recently diagnosed with Fibro. I guess one of the hardest lessons we have to learn is that we need to pace ourselves and not to beat ourselves up when we can't do all we want or need to do. I am fining it a hard lesson. Remember everything we can achieve is a victory.

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  4. All the best Deb. After 3 yrs of fibromyalgia I have learned that i must not stretch myself more than what is bearable. Take care!

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  5. Have you tried OPC3 for your fibrmyalgia? It has helped many people. http://bit.ly/a3a2ZT

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  6. Your fibro may be caused by something that you are eating that is causing a delayed food allergy. My daughter suffered for years and is now pain free. I suffered from arthritis and am now pain free. We were both "cured" in 10 days!
    http://delayedfoodallergy.blogspot.com/

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  7. Hello, I've tagged you for the Liebster blog award, because I really like your blog and it has fewer than 200 followers (I know you have more than 200 followers, but I'm blaming it on my Fibro Fog, cause I really love your blog). For details follow this link http://myinspiredlifewithfibromyalgia.blogspot.com/2012/06/yay-my-first-blog-award-liebster-award.html.

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  8. I also suffer from fibromyalgia and I just want to say that your blog has been really helpful. I wanted to share with everyone a great site, http://onlineceucredit.com/edu/social-work-ceus-pain, that has helped me cope with my pain. I hope others find it helpful.

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  9. Everyone!! My daughter needs your help...Please go to https://​www.missionsmallbusiness.com/ Put in Webster, NY Scroll down to Professional nutrition services/centre for optimum health and vote. She may save your life or the life of someone you love with her vision of the future of health care!!!Thanks for your support!!

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  10. Two books confirm that fibro, MS, chronic fatigue, and other debilitating conditions have at their base-- Lyme Disease.
    I had been diagnosed with Lyme Disease in 2005, have the same symptoms as someone diagnosed with MS in 2004, same treatment as relative diagnosed with Chronic Fatigue Syndrome. If you want the name of the book, it's,"Chronic Fatigue, Fibromyalgia, & Lyme Disease". My treatment
    with antibiotics eliminated almost all of my symptoms. I was treated for 8 mo., but had a secondary infection-which is often the case. Actually, I had a tertiary condition-Toxic Mold Syndrome(Sick Building Syndrome)-a mold sensitivity.
    First things first: have an internist take a blood test, have him ask the lab to check for Lyme Disease. When I needed a Lyme specialist, I looked in the Yellow Pages, under Naturopath, and asked the naturopath for a Lyme Disease specialist. Noone should be suffering needlessly.
    Lynne

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    1. You are SO right about the Lyme disease!! My husband was ill for many years with an 'un-diagnosable' condition that involved constant tiredness, awful circulation & what he calls 'teflon brain' meaning everything he wanted to really listen to & learn would kind of 'go in then 'slide off' (probably otherwise known as 'Brain fog')Also various mucle aches & pains for no reason and every winter living with constant chest problems/infections including one episode of pneumonia some years ago. Also terrible diestive problems. Despite many blood tests nothing was found except once discovering Helicobactil Pylori as far as the digestive problems were concerned. All these problems despite good food, excercise & generally never giving up on looking for answers! Working hard all through it apart from when pneumonia hit! Then he was bitten(without realising it) by a tick in Savernake Forest several years ago after which he had an inflamed area on his leg a week later, a fever & terrible pain in his back & hip. Went to the Dr. who prescribed antibiotics but didn't think the bite was relevant as the fever was short lived & no longer there & his job is very physically demanding. Over the next week as the pain got worse & the brain fog he has suffered from for many years also got worse, we went to the Dr. again as he had researched his symptoms online & thought the pain & inflammation seemed like Lyme disease? The Dr. didn't think it would be that as "this is England not America" but then agreed to get the tests done 'just in case'. We went on holiday to France & he was living on painkillers when we got an urgent call from the Dr. to say it was in fact Lyme disease & to get to a Dr. straight away!
      In short (as I could write pages about this!) after realising the lack of correct understanding of the disease over here (and pretty much everywhere else apart from some very dedicated Dr.s/specialists who will not let this get forgotten & dismissed) we took control of his treatment ourselves, fortunately with the actual support of the Dr. who both prescribed the quantity of antibiotics actually needed & not what was suggested (Dr. read what I printed off for her from the official Lyme diease website and actioned it!) Following this, a month after stopping the antibiotics & my husband having experienced the only 'normality' he had felt in many years, he relapsed with more pain & exhaustion with the old brain fog coming back! We then did more personal research & started using herbal antimicrobials & changed diet to include raw milk, as little processed food as possible within reason & only drinking water instead of sugary drinks & especially avoiding artificial sweetners. Chocolate is now eaten but organic 85% dark! He is now well after 28years of suffering this way and is coming to the end of an 18month programme of using the herbal/diet approach. There are things that I cannot state as 'fact' online but we know that Lyme has been the cause of all the illness way before he was actually diagnosed after the last bite! He had travelled the USA all those years ago, sleeping rough & being bitten many times after which he started getting ill. Blood tests will not find it unless it is specifically looked for & only then if the bacteria is in an 'active' phase so is still often missed even when there!

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    2. Funny too how I was diagnosed with MS in 1996 & our daughter is now struggling with what has all the symptoms of Fibromyalgia!? I am well but our daughter refuses (as teenagers of course often do)to consider advice on diet & treatment which is why I came across your blog!

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  11. I have had fibromyalgia for 12 years now. It seems like a lifetime. For many years I let it control me and had my little self pity party. I am so tired of that. I want to fight this with everything I have and that is what I have been doing. Things have been good lately especially when I have changed my way of thinking.

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  12. It is me again. I do have to give you lots of credit for even starting your own website. I do not have children or pets so It is just me. I cannot imagine having to take care of anyone except myself, some days that can be very challenging.

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  13. Hi Deb and hello to all you bloggers out there! I have recently reached out to others with fibro, because it can be a lonely place without each other. Trying to keep up with the rest of the "normal" world can be difficult and other people don't understand the depth of this illness. I have had fibro/CFS for 19 years and I spent the little energy I had powering through it, but I am getting a little too old for that strategy so I'm taking a kinder and gentler course now. One doctor thought I had Lyme, but lab tests did not meet the CDC criteria, which is a quite narrow definition. I opted to avoid long term antibiotics, because there are many dangers in taking antibiotics for that period of time. I have so much to say so I started a new blog at http://theFibroDirtDigger.blogspot.com. Deb, I felt so bad when I saw the negative comments that you had received from the one blogger. You can't take that personally; some people aren't in touch with the difficult place you have to live every day while you smile and make the best of it. It takes a great deal of courage to open yourself up and make yourself vulnerable in a public place. I admire you for taking that risk, because you make other peoples' lives better. Blessings to you!

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  14. Praying for you and wanted to bless you. So come over to my blog at this post http://savoriesoflife.blogspot.com/2012/06/win-two-civil-war-books-worth-30.html

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  15. My wife has fibromyalgia and I tend to stumple around online looking for information about the disease and for sites of other sufferers. I have great disdain for people who claim to have a cure or the latest and greeatest treatment because they are in it for a buck I appreciate the honesty of you posts. Take care and god bless.

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  16. tracy.rose@healthline.comAugust 6, 2012 at 8:59 AM

    Hi Debbie,

    Healthline editors recently published the final list of their favorite Fibromyalgia blogs and your blog made the list. You can find the complete list at: http://www.healthline.com/health-slideshow/best-fibromyalgia-blogs (in no particular order). We encourage you to share your status as one of the best blogs on the web with your friends, family, & followers.

    We also created a set of badges you can easily embed on your site & anywhere else you see fit:

    http://www.healthline.com/health/fibromyalgia-badges

    Please let me know if you have any questions.

    Congrats & continue the great work!

    Warm Regards,
    Tracy

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  17. I was a fibro sufferer for almost 13 years May of 2012 I was introduced to a company called youngevity. I had tried everything and had just about given up, but decided to try the product, that was late June. Today, only 2 months later I have NO fibro symptoms, not one. I can not believe that I suffered year after year and my doctors who I trusted with my life, were completely ignorant to the fact that I was suffering because of a mineral deficiency. Go to www.findmymineral.com/90/dynishacoates fill in the info and you will receive the same life changing info I did. I have my life back and I hops you get the same results that I did. A former fibro sufferer.

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  18. hi there Debbie. Like you, I have to live with this wretched condition. I find that, although my hubby is truly supportive, there are times that he just can't understand. Like you, I also started a blog. I had to find a way to discus what I'm currently feeling, whether I be in pain, or actually having a relatively good day. Its comforting to know that there are others like me out there that can understand what i'm going through. You're welcome to pop into my blog at http://throughthefibrofog.blogspot.com/

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  19. So nice to hear from everyone. I have evrything including drug sensitivities food allergies, U name it. Just hade an Upper GI endoscopy and the excess acid is caused by the fibromyalgia that is now impacting the enteric nervous system. any way my hands hurt. I'm hoping to connect with a single person who is having same problem or has had success with dating and finding a man who will stay in spite of fibromyalgia. I have had this problem since diagnosed after a fall when I was 32. I am now 51 and recently disabled hoping I will get permanent disability. Scary time. thank you again everyone for thoughts and resources.

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    1. Good luck with your difacility case. I filed for disability with Social Security two years ago. I have been denied at all lower levels. My case is now on an appellate judges desk for final decision. His decision could take up to an additional six months! I pray that I get approval at this level because without it, I will lose my home. I simply cannot work due to the chronic pain. I was told that if I were 50 years old or older that my case would probably been approved long ago. I was 43 when I filed. I have dealt with the multitude of ailments that go along with fibre for at least five years now. My in-laws, friends and family cannot "see" my illnesses, so they all have the belief that I am simply lazy. I can no longer justify myself to them, so I let them believe what they want. I know the truth.

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  20. Keep up the great piece of work, I read few content on this site and I think that your site is very interesting and holds sets of wonderful information.

    Thanks
    Ek lakhh
    Fibromyalgia Herbal Remedies

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  21. Hi Deb I just started taking Lyrica I am sitting at my computer reading side effects. This is the first drug I have tried do you know if it helps. I am getting worse now and need advice. B

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  22. I wonder if there is come connection to F/M and Type A personalities?! I, also, am Type A and my family teases that I am OCD!! I also struggle with the "Cant's"!! Your remarck about what you CAN accomplish really hit home..Thanks! I was recently put on (3) Lyrica (50mg) per day and I wonder if that sounds about normal?

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  23. Hi there, My Name is Gail and I live in the UK.. I was diagnosed with FMS 3yrs ago and also RA 5yrs ago.. I have been looking for people to talk to that have the same disease and would like to chat on a regular basis (penpal type) on how they cope on a regular basis. I have recently gone through a knee opperation and having regular flare ups at the min, finding life hard and with mood low its not all a bed of roses at the minuet. G x

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  24. Deb,
    So sorry to find another fibro. sufferer. This disease is so debilitating, people who don't suffer from fibro. have no clue and are very ignorant of the sufferring we endur.

    I have had fibro. since 1996,,,before it was even a disorder. It was called many names back then such as myalgia, fibrosis and just plain ole' chronic pain...we have come a long way since then.

    Kuddos to you for hanging in there and helping others with this horrable disease. If your interested,come on over and check out my fibro. blog at www.fibromyalgiacareblog.com

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  25. Will you please research Plexus Slim. We have so many great products that help with Chronic Pain.
    The pink drink is amazing with getting rid of inflamation.
    My mother "HAD" chronic pain and could barely walk to the restroom in her home sometimes. Now that she has been on Plexus Slim for 2 months, she is doing yard work!! I truly believe in this product and would like to help as many people as I can!
    It is giving those suffering with Chronic Pain a new lease on life!
    Please check out the Plexus Slim drink, fast relief capsules, fast relief cream, and Fast relief nerve health.
    www.justdrinkpink.com

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