This week has been a challenge. I haven't blogged. Sometimes it is one more thing to do. I do enjoy posting as it helps we see my day.
My Fibromyalgia symptoms are still at a higher level, altho better than a week ago. Guess I'm moving forward. My Chronic Fatigue continues to be aggressive. I'm taking two and two and a half hour naps and still ready for bed early.
Saturday I wore my legs out and knew I was close to them giving way. We had wood shed duty (selling wood) for four hours. Dwain was kind and let me sit in a chair to collect the campers' receipt and tally while he loaded the wood. I felt like I was not holding up my end of the job, but he insisted. I was grateful, but had to get to a place of being ok with his generosity. I'm sure others have the same frustration. I want so badly to be normal. Sometimes it's hard to accept my Fibromyalgia. But must move on .....
We are enjoying the other campground hosts. They are friendly and do their work well. Our duties are to clean the camp sites once the camper has left (two days a week), sell wood (two days a week) and on Sunday we will do an interpretive program. Dwain will teach basic photography, taking the campers over a nature trial, ending up on a viewing platform where they can learn about eagles. That's my job...to learn about eagles and provide information. We have an eagle and two fledglings (baby eagles) in a nest. The park provides binoculars and spotting scopes. A couple days ago I walked to the marina area. It was a perfect day...blue sky, warm, adults and children were fishing and/or picnicking. The eagle was flying over head. It was very calming and I soaked it up for awhile.
We are attending grandson Patrick's spring music concert tonight. Always an enjoyable evening. He is an 8th grader and plays with the high school band. After he attended the Seattle Heritage Music Festival, he received a invitation to audition for a band that is traveling to New York, time at Julliard then a concert at Carnige Hall.
Tomorrow our youngest son Adam, daughter-in-law, Carrie and granddaughter, Lyla will arrive for a two day visit. Hard to Lyla is 20 months. I'm grateful they can take the time to visit as it is a 6 hour drive.
It's only about three weeks until our oldest son, Seth and his partner Steve will visit from Chicago. They will spend July 4th with us. That is also Dwain's birthday. Very excited for their visit. I wish we all lived near one another. I miss seeing my kids daily.
Lucy continues to grow, but not by much. She will be three months on Monday and is still potty training. There are moments when I think she's "got it" but not yet! She did take me to the door this morning, but not since. She is due a Vet appointment next week for a checkup and second set of shots. She is a source of great entertainment...a funny puppy. She is a snuggler, which I have enjoyed. We took a nap together yesterday. :D
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Hi, Deb! Yes, I have the same frustrations that you have over not being "normal" or not being able to help out very much. But don't let it get you down, too. Then the fibro has "won" and we don't want that!!! Just keep your chin up and remember that flares don't last forever. They just FEEL like they do!! You will have days when you feel better than others. It's those days you can help out and feel "normal" again. I like your blog and hearing about Lucy. Keep up the good work. Stop by my blog at: http://missyschranz.blogspot.com. I'd love to have you read it! :0)
ReplyDeleteHave a good day,
Missy Schranz
I frequently follow your blog, though I don't necessarily comment. I have to say that this Blog Post has been the closest to what I, too, have been feeling with my Fibromyalgia.
ReplyDeleteI also have a Fibro blog. It's here: http://fibrofizz.wordpress.com/
I would love it if you would stop by and say Hi. Have a good week, hang tough. I know it's hard, I do. I too take naps during the day to make it through to the evening. If that's what it takes, then that's what it takes. I think you're doing GREAT.
Hello Deb. My name is Debbie. I have fibromyalgia and your blog makes me feel less alone in my pain. There are days when I just don't feel like anyone understands. I have to be thankful that I have just as many days when the support of my friends and family is just as strong as the pain I feel. Thank you for your blog. I will continue to read.
ReplyDeleteThank you all for posting your thoughts. You all make me feel great! :D
ReplyDeleteHi Debbie, wanted to jump in here I dont comment all the time either..it is nice to know we are not alone..I have a hard time giving into this nightmare illness..my husband is a saint literally but i know its frustrating for him..our later years were supposed to be fun with travel, etc..now its pain pills and naps..
ReplyDeleteEnjoy your family's visit..I miss my kids too..
Barb